The Colon Cancer Alliance for Research & Education for Lynch Syndrome
The Colon Cancer Alliance for Research & Education for Lynch Syndrome (CCARE Lynch Syndrome) is leading the fight against Lynch syndrome through advocacy, education and research. Lynch syndrome is a genetic disorder that dramatically increases an individual's risk of developing many kinds of cancer, and it is the most common hereditary cause of colon and uterine cancers. People with Lynch syndrome have a 50% chance of passing it on to their children, and tend to get cancer much earlier than individuals without the gene.
When someone knows that they have Lynch Syndrome, they can take active, life-saving steps, such as early detection testing beyond what otherwise would be recommended. Therefore, in collaboration with Dr. Henry Lynch, health care professionals, Drs. Neil and Sharon Perlman, founded CCARE Lynch Syndrome to increase awareness and save lives.
Women with Lynch syndrome have an increased risk of uterine, ovarian and breast cancers. CCARE Lynch Syndrome collaborates with national non-profits dedicated to women's cancers and founded World Lynch Syndrome Gynecologic Cancer Awareness Day, which will take place on September 18, 2014.
CCARE Lynch Syndrome collaborates with the University of California - San Francisco Kintalk to produce educational materials. The all-volunteer organization provides community and professional educational programming and presents at national professional conferences. For example, Dr. Perlman will be lecturing at the Society of Gynecologic Nurse Oncology Symposium in San Diego on April 2-4.
Supporting emerging Lynch Syndrome research, the CCARE Lynch Syndrome Research Award is presented yearly at the Society of Gynecologic Oncology Annual Meeting on Womenâ€™s Cancer.
What new functionality we are looking for
A user friendly, visually appealing website that will allow CCARE Lynch Syndrome team members to easily update the content.
A form field for donations and memorial tributes
A form field for program registration
Prominently feature icons for Facebook, Twitter, and e-mail sign up
A rotating picture area to feature upcoming programs, cancer facts, and emerging research
An enhanced page to highlight and link to our partners
An updated look so everything is not posted in one centered column
How the new functionality will help
We have great passion and expertise, but we are limited because of the limited use of our current website.
The ability for team members to easily update the website is particularly important because there are constant new developments that need to be quickly reflected on the website, to make sure that our material is not outdated. We need to effectively post groundbreaking research, list current protocol for health care professionals, and spread the word about hereditary cancer. If people have never heard of it, they can't take steps to identify cancer at the earliest stage possible.
Making the website user friendly and visually appealing is crucial as well,because the topic is dry and technical, and we want our website to reach people who have no medical background.
How our organization will use the technology
Who will use the technology
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